Beka Ramsey was born with heterotaxy, leading to a heart defect that required two surgeries before her first birthday. She has managed her condition well for over 20 years and now works in the NICU at ...

Here, we report on a 2-year-old girl with a chromosome breakpoint in the ZIC3 region and congenital complex heart malformation, situs ambiguus and normal psychomotor development. The girl was born at ...

Heterotaxy syndrome encompasses a spectrum of congenital disorders in which the normal left–right asymmetry of thoracic and abdominal organs is disrupted. Rather than the orderly mirror image seen in ...

A new children's book, "If You’re Lucky Enough to Know a Unicorn," was inspired by a child who passed away from a rare condition. The book aims to teach readers about the impact children have and ...

Amara Lee Robinson of Scipio was diagnosed with heterotaxy syndrome. A benefit event is planned in September. SCIPIO — Amara Lee Robinson was born three weeks early at a women’s health clinic in ...

NEW JERSEY -- As lawmakers push to get a health care bill through the Senate, one New Jersey mom is speaking out. Alison Chandra's son, Ethan, was born with heterotaxy syndrome, a rare genetic ...

Atlanta native Beka Ramsey is 1 in 10,000. Those are the odds someone will be diagnosed with the rare, often life threatening disease called heterotaxy syndrome. Identified in utero, she had a hole in ...

As lawmakers push to get a health care bill through the Senate, one New Jersey mom is speaking out. Alison Chandra’s son, Ethan, was born with heterotaxy syndrome, a rare genetic disorder in which ...

The Heterotaxy Syndrome Awareness Walk is scheduled for May 4 at the Brighton Mill Pond, sponsored by nonprofit Malachi’s House of Hope. The event's registration begins at 6:30 p.m. and the two-mile ...

When news breaks, you need to understand what actually matters — and what to do about it. At Vox, our mission to help you make sense of the world has never been more vital. But we can’t do it on our ...

The mother of a young boy with congenital heart defects has published a copy of her medical bill to show how much for uninsured American citizens under proposed legislation to repeal Obamacare. If ...